Aaron’s intermittent exotropia I discussed previously has been getting progressively worse. Meri and I have both been noticing that he is squinting more and more, even when he’s not outside in full sun and even when he’s wearing sunglasses.  Meri and I have had a bad feeling about what we both [pessimistically] thought would need to happen next.

Meri took him to the ophthalmologist again yesterday to have him re-examined (since it’s been 6 months since he was first diagnosed) The doctor is one of the best in the area (from what we’ve been told).  Meri works in an ER and has spoken with several opthamalogists that stroll through there and they recommend him (and more importantly, use him).

The doctor looked at Aaron’s eyes and told Meri that his condition was deteriorating. He told her that the only solution for Aaron’s case was to have the corrective surgery.  We knew this day was coming and have talked about what we should do next.  We’ve done a lot of research and have both anguished about this decision for a long time – we decided that Aaron should finally have the surgery.

I can’t speak for Meri, but I am not fearful that the doctor won’t do a good job and I am fully expecting that the surgery will be successful.  We are both very worried about Aaron having to be sedated for the surgery. Meri working in the medical for so long is both a blessing and a curse in that she knows a lot about what to expect.  Knowledge can be power but it can also be crippling, especially in the case of surgery for one of your kids.  While the surgery is not exactly necessary (in my understanding anyway), if successful, it would greatly improve Aaron’s quality of life.

So the surgery is scheduled for just under two weeks away (July 10th).  We have a pre-op appointment 7 days before the surgery so that we can hear about all of the details. Meri spoke briefly about recovery time and the doctur said that it would only be a few hours for Aaron, but he couldn’t go to the pool or play with sand for a week after the surgery.

Today, my sleep-deprived wife made me a big breakfast when she woke up.  Aaron drew me a card and actually wrote several sentences in it!  It was one of the best cards I’ve ever received.  Meri got me a picture of my boys together and a picture of their hand prints. She also got me Metroid Prime 3 for our Wii.

Aaron and I had a fun day. We played the beach ball game in the house a couple times, we went to the pool, we watched T.V. together and we did about 4 or 5 puzzles together. Aaron had his final soccer game of the season last Thursday (6/5/08).

The coaches had a party for both teams and all of the kids got a trophy for playing. They had all kinds of great stuff for the kids, pizza, cupcakes, fruit and veggie platters, soccer tattoos, a trampoline, a tire swing and a cool tree house. At the end of the party, all of the kids got a cool trophy.

We came back from Aaron’s soccer party tonight and started the bedtime routine about 45 minutes late because of the party. We came into Aaron’s room and I put some water into his fish tank since it keeps losing water somehow. Meri came in with Eli and was looking at the tank and I said “I put extra water in it” and she said “that’s not why I’m looking at it”. It turns out that one of Aaron’s fish, named Orange (see picture below) died. R.I.P. Orange, Aaron will miss you very much!

We bought Aaron a fish tank as a reward for behaving so well for a long time. He loved it. Here are a couple of pictures of Aaron’s fish tank and his final surviving fish, Grapey.

Well, not literally a ton but he does weigh about 16 1/2 pounds! I don’t think Aaron weighed that much until he was about 8 months old. The biggest difference between Aaron and Eli’s weight is that Eli doesn’t spit up nearly as much as Aaron did. When Aaron was Eli’s age, he had acid reflux which caused him to spit up all the time.

We got back from our trip to mass. on Tuesday. The trip was like our
normal trips, some fighting, some fun, more uncomfortable than anything
really. We had Aaron’s birthday party on sunday, in mass. He had a lot
of fun and got quite a few gifts. We had to mail ourselves a box full of presents even after we filled up the extra bag that we brought to fly some presents back with us! When we got home, we gave Aaron the presents that we got for him: a slushy maker and a fish tank! Meri took him to the pet store and got him a couple of small fish. He named them “grapey” and “orange”. He gets really excited when it’s time to feed them.

We got back Tuesday and I went to the 2008 LANSA User Conference here in Orlando. I got to talk to a few people I worked with at Terminix and attended some of the WAM sessions. Those were great! I found the AJAX lab to be a bit lacking and the speaker wasn’t that good in my opinion.

I worked from home yesterday and now it is Friday and I am back at the office. I haven’t been here for a week! I must’ve saved a ton of money on gas (well, like $60). Now I’m on-call for the weekend.

Yesterday, when I was working from home, I took a break for lunch (which is unusual for me), I sat with Eli for a bit and I was playing with him on the couch. I started making some weird noises and poking around his mouth to try and get him to smile at me. Normally, it’s difficult for me to get him to smile but he smiled at me for about 20 minutes! It was awesome! I loved it when Aaron first started smiling at me and I love it now that Eli is doing the same. I can’t wait until Eli is walking and talking as well.

Of course I mean my interest in my current job.  It seems I can’t stand to stay at a place for over a year (check my linkedin.com profile).  There are a few LANSA contracts in central Florida but with the economy behaving the way it is, I think I’m too nervous to take that step and work for myself. Meri can tell when I’m fed up with my jobs and last night, she told me that she would be OK renting the house and moving again. That’s the last thing I want to do. We’ve moved 4 times since I graduated from college and I’m sick of packing up all my junk and moving it around. I’d rather stay in central Florida as long as possible. I thought about maybe going to school to get a masters degree in something from UCF but I don’t think now is the time for that. Meri and I were talking and she’s very interested in going back to school to be a teacher. Right now, she’s looking at getting a master’s degree for herself. She’s looking to be finished in about two years.  That’s not a whole lot of time and we’ll be more than comfortable living on my income alone. We’ve been doing it for the past couple of months and we haven’t HAD to slow down our spending; we have cut back but not out of need, I just want to start putting a lot more away for retirement. I’ve also become very interested in getting back into web development. Basically, I’d like to do what I was doing at my last job, just with a stable company this time!

In other, less pleasant news, we’re flying up to Massachusetts to visit the in-laws and yes, we’re flying with both of our kids! In more pleasant news, we’re going to celebrate Aaron’s 4th birthday birthday while we are up there and and also let the rest of the family meet Eli for the first time. Aaron’s birthday is next Tuesday, May 6th.

I think that’s enough rambling for now. I have another blog that I’ve been posting short posts to, it’s at dfktv.com. Also, if you have any idea what Twitter is, follow me!  I can be found here.  Twitter is pretty damned addictive, especially if you use it in conjunction with twhirl!

Bad attitude Aaron is 95% gone and the old Aaron is back. He hasn’t had casein in his diet since Friday (4/18/08) morning and his attitude has improved greatly. The only thing I still see missing is his attention span. He used to be able to do the 100 piece puzzles with me with no problem at all. Now, he is having issues paying attention for more than about five minutes.

We bought a new car! A mini-van actually; it is a slate metallic green Honda Odyssey. I heard a radio ad about “up to 30% off on clearance vehicles from a chain of local car dealerships and when I got home, I checked out the prices. I noted a Honda Pilot and the Odyssey. They had both listed for a very low price. I called, expecting they would be out-of-stock and sure enough, they were. I asked how much a base-line model of each vehicle would be and was told about $5,500 less than the MSRP on both vehicles. We went up there Saturday to look at both the Pilot and the Odyssey side-by-side and based on functionality (why did Honda shove an non-functional third row of seats into the Pilot?!), we bought the mini-van. I didn’t think we’d ever own one since Meri has been 100% against buying one since it would be her vehicle.

The Odyssey has the same gas-mileage rating as our old Jeep Liberty so there wasn’t a savings there. I feel like the Honda will be a longer-lasting vehicle (than the Jeep) and much safer for Meri and our boys. Plus, we now have even more room for more kids (hello Cadence – daddy’s little girl, someday I hope).

Aaron has been on a tear lately, since Monday (4/14/08) of this week. As of yesterday, 4/17/08, I have come home 3 of the last 4 days to him screaming at my wife. If you heard his screaming from out on the street (and you probably could), you would think this kid was completely out of control and he must have terrible parents. This is absolutely not the case. 95% of the time, Aaron is you typical happy child. He’s very fun to be around when he’s like this. He shows how smart he really is and how funny he can be. Sometimes though, seemingly from nowhere, his temper shows itself
.
This past week has been about 100 times worse than it has ever been. Now, when he gets upset, his anger would be better described as a rage. He is out of control. Monday, Meri went grocery shopping with him and Eli. They walked by an area where Meri bought him some colored sand the last time they were shopping but this time, there wasn’t any sand there. Aaron flipped out!! He started yelling and screaming about the sand and how he wanted it and where was it and why wasn’t it there. Typically, when Aaron starts acting like that, I would say that he was over-tired and desperately needs to get home to either take a nap or just sit on the couch and relax to some Noggin. This shopping trip ended with Aaron screaming and yelling at Meri, pulling her hair, punching her, slapping her, and for the first time ever, biting her! He bit her three times – once on her cheek and that left a mark for about a day. When they got home, he decided that he would flip over Eli’s car seat – with Eli in it.

When they got in the car, Meri called me at work and asked me to come home. On my end of the phone, I hear my wife crying, asking me to come home, Aaron screaming/raging in the background and Eli was crying. So I picked up all my shit, told my team lead I had to leave and booked it out of here. It took me about 30 or 40 minutes to get home. I finally got there and, to my surprise, Aaron was STILL raging. This episode has been going on for over 90 minutes at this point.

This was been the single worst day with Aaron, ever. I hope that it remains the worst day in his childhood, forever. Since Monday, I’ve come home to Aaron screaming and raging at my wife two other times, every time with her and Eli being hit.

I worked from home the rest of Monday and Tuesday is my weekly work from home day. Meri and I talked about what we should do and how we should handle it and neither of us has a clue. Something has changed Aaron’s behaving dramatically in the past week. On Tuesday, I made an appointment to see a child psychiatrist! We are supposed to go next Wednesday, 4/23.

Meri and I have been thinking about what could cause such a degradation in Aaron’s attitude. The only thing that we can think of is the major increase in cow’s milk and casein in Aaron’s diet. Since we’ve discovered that Aaron is no longer allergic to milk and egg, we’ve been letting him try any- and everything he wants that he could never have before. He’s loved it. When he eats something that he could not eat before, he says “I’m not allergic anymore so I can have this”. It has been wonderful to let Aaron eat things that he couldn’t have before. He really seemed to love it. But now, we have decided to take out most of the milk from his diet. Our reason for this line of thinking revolves around the autism-diet.

Autistic kids should be on a very strict gluten- and casein-free diet. Casein is a protein found in milk and products containing milk, such as cheese, butter, yogurt, ice cream, whey and even some brands of margarine. It also may be added to non-milk products such as soy cheese and hot dogs in the form of caseinate. When the diet is followed correctly, an article that I just found says:

Some parents, doctors and researchers say that children have shown mild to dramatic improvements in speech and/or behavior after these substances were removed from their diet.

We are firm believers in how a child’s diet effects their attitude and behavior. We’re taking all of the casein out of his diet again and let his body “detox” for a while. We’ll re-introduce the casein at a very gradual pace this time. I don’t know if we’ll keep the appointment or not.

Aaron starts soccer practice tonight. This time, he’s on a team that we thought was really badass the last time he was in the league. This team was great last year in that most of the parents wore shirts that matched the kids’ jerserys at each game. There was enough kids on the team last season that some were able to sit and rest and didn’t have to run the entire game.

This soccer season is sort of weird though, we have our first practice tonight and our first game on Saturday! I know there will be some kids that won’t be ready to play a game after only one practice so it will be interesting.

Meri got her truck back after 13 days in the shop! Hooray for the shop not having anything else to do so they could have 4 people working on the Jeep and being 16 days ahead of schedule!

Eli is eight days old. After having him with us, I can’t help but wonder…why didn’t we do this sooner?! Seriously, this is great. Eli sleeps through the night (mostly, he might wake up twice), cries softly and is adorable too! It is wonderful to see Aaron interacting with him. Oh! Eli takes a pacifier! Do you know/understand how wonderful that is?! Is he crying? Give him the pacifier? Still crying? Feed him. These two things quiet 90% of the crying that Eli does, it’s amazing!

I’m glad we had Aaron first and learned how to deal with his needs (there were lots). Eli’s baby phase is night and day with Aaron’s baby phase. Aaron had us both on our toes; Eli makes us forget we have toes.

Meri’s aunt came down from Massachussettes to help us for 10 days. She handled Aaron and all of his needs/wants and Meri and I handled Eli, not that there needed to be two of us doing that; he is so easy-going. Having her here was great! Aaron loved doing anything and everything with her.

The only bad thing that happened while she was here was that she got into a car accident when taking Aaron to Sea World this past Monday. Poor Aaron, he’s been in two accidents in about 3 years! It was Meri’s aunt’s fault. Nobody was hurt, the girl that got hit might even start watching Eli a couple of days during the week at our house when/if Meri decides to go back to work. She worked with tutoring kids for three years and is an Elementary Education major. So this might have turned out to be a “good accident”. So the bad part of the accident? $6900 worth of damage (at first glance anyway, could be more) and we’re without Meri’s car for a month, minimum! We are getting a rental car and Meri’s aunt is paying for most of that plus our insurance deductible. That was very admirable of her and it takes us out of a pinch, since we really didn’t have that kind of money to fork out since Meri just stopped working. We are picking up the car next monday and I’ll drive that thing to and from work.

Having a newborn home and Meri not having a car did present an awesome opportunity for me though. I am working from home four days this week! I really like working from home. I can wake up and come to my computer and just start working! No more commuting for an hour in the morning and then an hour at night. I just start working at 7 or 8 am and then just stop around 4 or 5.

Even with the accident while she was here, it was a huge help having Meri’s aunt here. It gave us some transition time with the two kids and an opportunity to attempt a new schedule with two kids. Aaron had tons of fun helping her cook (and she cooked A LOT!).